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Cystic fibrosis: adult

Published on 19 July 2022

The service provides specialist respiratory care for adult patients with cystic fibrosis (CF). Three specialist centres operate across Scotland, in Aberdeen, Edinburgh and Glasgow. The centre in Edinburgh also has an outreach service to both Dundee and Inverness.

Mainly, the centres see outpatients to assess, treat and review adult patients. There is provision for day case and inpatient services, if patients require interventions within the three specialist services.

What is cystic fibrosis?

Cystic fibrosis is a common inherited disease in the UK, that's caused by a genetic mutation. The condition will only develop if both parents are carriers of the genetic mutation.

Although the severity of symptoms can vary, in its more severe form the disease causes thickened secretions in the lungs and pancreas. This leads to:

  • deteriorating lung function
  • persistent chest infections
  • liver and bowel problems
  • diabetes

Adult Cystic Fibrosis Service de-designation

Delivering a new service approach to support the Adult Cystic Fibrosis community.

NHS National Services Scotland (NSS) is working with Scottish Health Board partners to provide a progressive and responsive service for Adult Cystic Fibrosis patients and their families. This will support a continuous provision of high-quality care and support to adult patients with cystic fibrosis and their families.

A review of the Adult Cystic Fibrosis (CF) Service took place in 2019. One review finding highlighted that the service no longer met the criteria for national designation. Due to improved treatments, patient survival has been enhanced, and the increased patient cohort size fits better with a regional delivery model.

The new approach replaces the current national model and will begin on April 1, 2023.

Patients and their families will continue to receive the same high level of NHS service. No patient will be negatively impacted.

This new approach has been developed for and with our Adult Cystic Fibrosis community. We will continue to engage regularly to ensure that the voice and needs of the Adult Cystic Fibrosis community remain at the heart of this new approach.

We look forward to sharing the results of these discussions and will regularly update the Adult Cystic Fibrosis community and our NHS colleagues over the following months.

Together, we will work hard to ensure these changes work for patients, families and communities.

De-designation FAQs

For more information, please review our FAQs for Adult Cystic Fibrosis Service de-designation.

Lead clinician

Aberdeen – Dr Owen Dempsey

Edinburgh – Dr Helen Rodgers

Glasgow – Dr Stephen Bicknell

Addresses

Ward 107
Aberdeen Royal Infirmary
Forresterhill
Aberdeen
AB25 2ZN

Ward 54, 1st Floor
Anne Ferguson Building
Western General Hospital
Crewe Road South
Edinburgh
EH4 2XU

Respiratory Wards 7A & 7D
Queen Elizabeth University Hospitals
1345 Govan Road
Glasgow
G51 4TF

NSD contact

NSD Specialist Services

Please note that NSD does not directly provide medical services and we won't be able to answer queries about your own care or appointments. If you would like to discuss any aspects of your care, please contact your primary healthcare provider. This might be your GP, Consultant, Nurse or other healthcare professional. They will be best placed to give you the right advice.