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FOI release

FOI – 000174 Communications relating to SSR Council and EDS (HTML)

Published on 12 August 2022

Date received – 26 July 2022 | Date responded – 12 August 2022


Thanks very much for your email and attachments in response to my FOI request. I write to further request, under the same Act:

  • All communication received from and sent to the Scottish Society of Rheumatology Council between December 2018 and December 2019 in relation to the application for service designation for the Scottish Centre for Complex Ehlers-Danlos Syndrome.
  • In particular, comments received from the SSR Council regarding the continued development of a Stage 3 application for the centre (as referenced in Appendix 5 of your most recent response to my FOIs - the NSSC minutes from 18 September 2019).


Under Section 17 of the Freedom of Information Scotland Act an organisation does not require to provide information if it does not hold that information. NHS National Services Scotland (NSS) does not hold this information. Having checked the papers in relation to the application, we do not hold any correspondence between NSS and the Scottish Society for Rheumatology (SSR) between December 2018 and December 2019. It is normally the applicant who would canvass for letters of support in relation to an application not NSS.

I trust you will find the information of assistance and if you require any further information please do not hesitate to contact us.

If you are unhappy with any aspect of how we have dealt with your request you can make representations to us asking us to review the handling of your request.

If you require any further information please contact Associate Director Information Security & Governance, within 40 working days of the date of this correspondence.



NHS National Services Scotland
Gyle Square
1 South Gyle Crescent
EH12 9EB

If after a review you are still unhappy, you also have the right to apply to the Scottish Information Commissioner, who can be contacted at Kinburn Castle, St Andrews, Fife, KY16 9DS, or via their application form.

National Services Scotland (NSS) is committed to publishing all information released in response to Freedom of Information requests. You can view all FOI responses within our FOI Publications repository.