FOI – 2024-000143 Von Willebrand Patients (HTML)

Date received – 02 April 2024 | Date responded – 29 April 2024

Request

In the last 3 months (January, February, and March 2024), how many von Willebrand patients were treated in your trust with the following coagulation factors for the following regimen:

1. Voncento

• Prophylaxis
• Intermittent prophylaxis
• Surgeries
• Treatment of bleeds

2. Veyvondi

• Prophylaxis
• Intermittent prophylaxis
• Surgeries
• Treatment of bleeds

3. Wilate

• Prophylaxis
• Intermittent prophylaxis
• Surgeries
• Treatment of bleeds

4. Willfact

• Prophylaxis
• Intermittent prophylaxis
• Surgeries
• Treatment of bleeds

Response

We have now completed the search of our records and can provide you with the following information:

Under Section 17 of the Freedom of Information Act, 2002 (FOISA), an organisation does not have to provide that information if it does not hold it. NHS National Services Scotland (NSS) does not hold some of the information you have requested.

Under Section 38 (1) (b) of FOISA, where the patient numbers are fewer than 5, the details have been redacted to ensure no patient identifiable information is released in line with the Caldicott Principles.

For the information we do hold, please find attached Appendix 1 – Coagulation Factor data, with the following caveats:

Supply data on Appendix 1 shows the number of vials supplied to patients via homecare only, as hospital supply data is unavailable for the period requested. This is due to NSS National Procurement (NP) only receiving this data on an ad-hoc basis from an external body, the Commercial Medicines Unit (CMU). We recommend contacting CMU at pharmacyqueries@cmu.nhs.uk who may be able to provide these figures for hospital usage.

We are unable to break this down by regimen, as we do not hold this level of detail. You may wish to contact the individual Health Boards who might be able to provide more detailed figures around patient numbers and the regimen for these drugs:

• Ayrshire and Arran - foi@aapct.scot.nhs.uk
• Borders – foi.enquiries@borders.scot.nhs.uk
• Dumfries and Galloway – dg.feedback2@nhs.scot
• Fife – fife.foirequestfife@nhs.scot
• Forth Valley – fv.freedomofinformation@nhs.scot
• Grampian – gram.foi@nhs.scot
• Greater Glasgow & Clyde – foi@ggc.scot.nhs.uk
• Highland – nhsh.foirequestshighland@nhs.scot
• Lanarkshire – foi@lanarkshire.scot.nhs.uk
• Lothian – foi@nhslothian.scot.nhs.uk
• Orkney – ORK.FOIrequests@nhs.scot
• Shetland – shet.foi@nhs.scot
• Tayside – tay.informationgovernance@nhs.scot
• Western Isles – wi.foi-requests@nhs.scot
• NHS24 – foi@nhs24.scot.nhs.uk
• NHS National Waiting Times Centre – FOI@gjnh.scot.nhs.uk

I trust you will find the information of assistance and if you require any further information, please do not hesitate to contact us.

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Contact

Address

If after a review you are still unhappy, you also have the right to apply to the Scottish Information Commissioner, who can be contacted at Kinburn Castle, St Andrews, Fife, KY16 9DS, or via their application form.

National Services Scotland (NSS) is committed to publishing all information released in response to Freedom of Information requests. You can view all FOI responses within our FOI Publications repository.