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What are national networks?

Published on 27 February 2020

Clinical networks

Clinical networks support service improvement for patients with rare conditions or highly complex care needs. This covers a range of conditions.

Follow the links below to learn more about each network. Each link will take you to an external website.

Networks for adults, young people and children

Care of Burns in Scotland (COBIS) – enhancing care for those with serious burn injuries. This includes ensuring patients get care quickly at an appropriate centre.

Children and Young People's Allergy Network (CYANS) – improving the lives of children and young people living with allergies.

Children with Exceptional Healthcare Needs (CEN) – working to make sure all children with these needs receive specialist care throughout the patient journey, improving quality of life.

Cleftcare Scotland (Cleftcare Scotland) – connecting patients who were born with a cleft lip and/or palate, plus their families and health professionals, to ensure they receive the highest possible levels of care.

Network for Inherited Cardiac Conditions Scotland (NICCS) – giving those affected by inherited cardiac conditions the opportunity to access relevant, high-quality information about these conditions when they need to.

Inherited Metabolic Disorders Scotland (IMD) – improving diagnosis, treatment and support for anyone living with an inherited metabolic disease.

National Gender Identity Clinical Network Scotland (NGICNS) – aims to bring together primary care, patient and third sector representation to improve gender identity services.

Perinatal Mental Health Network (PMHN) – aiming to improve mental health outcomes using the right professional expertise and effective service delivery.

Phototherapy Network (Photonet) – working to standardise the approach for patients with skin conditions that respond to light therapy.

Scottish Acquired Brain Injury Network (SABIN) – aims to improve quality of care for patients living with acquired brain injury by bringing together service users, healthcare professionals, service providers and voluntary sector groups.

Scottish Differences in Sex Development (DSD) – supporting families from when a DSD is suspected through to adulthood via pathways of care that address particular needs at different stages.

Scottish Muscle Network(SMN) – children and adults with neuromuscular disorders can benefit from the Scottish Muscle Network.

Scottish Obstetric Cardiology Network (SOCN) – providing equity of care to women with an existing cardiac condition during pregnancy, or those who develop a cardiac condition whilst pregnant.

Scottish Paediatric and Adult Haemoglobinopathies Network (SPAH) – sickle cell and thalassaemia are both examples of haemoglobinopathies (blood disorders). This network provides national procedures and protocols to provide a high standard of care to each patient.

Scottish Inherited Bleeding Disorders Network (SIBDN) – coming together to facilitate improvements for those with inherited bleeding disorders by using their feedback.

Scottish Paediatric and Adolescent Rheumatology Network (SPARN) – ensuring consistent managment and diagnosis of children with rheumatic conditions.

Scottish Paediatric and Adolescent Infection and Immunology Network (SPAIIN) – improving access to quality services and maintaining that level of care for those with a compromised immune system.

Scottish Paediatric Endocrine Group (SPEG) – ensuring significant and continued improvements in the outcomes of children and young people with endocrine conditions.

Scottish Paediatric Epilepsy Network (SPEN) – educating those who care for children with epilepsy and agreeing the way forward for services provided.

Scottish Paediatric Renal and Urology Network (SPRUN) – enabling access to high standards of care across renal urology and putting indicators in place to measure those standards.

Surgical Congenital Anomalies Network Scotland (SCANS) – working throughout Scotland to support and connect those involved in treating and caring for patients with Congenital Diaphragmatic Hernia (CDH) and their families.

Visual Impairment Network for Children and Young People (VINCYP) – collecting and reporting visual impairment data, and connecting those involved in the care of children with visual impairment.